Having your son or daughter diagnosed with Gliomatosis Cerebri (GC) can be scary. However, we know that informed and empowered families are better able to manage living with a disease. By providing you with this information, we hope to help you understand what we know about the disease and help you navigate the days ahead.
With this guide, you will learn more about GC and start to understand what this condition entails. Medical terms and scientific language can be confusing and may not help you to cope with the diagnosis of a serious disease. We hope that with this information you will be able to help your son or daughter, as well as your entire family have a better understanding of the condition.
It is important to know that you are not alone. In Share4Rare, you will have access to information and the opportunity to connect with other people who are going through the same process. Our purpose is to provide you and your family with the best quality information and tools to assist you through this process.