Join Share4Rare!

Sign up to gain full access to this unique rare disease community. With tailored content specific to your  disease, you will be able to: meet other people affected by a similar condition, create  or be part of customised communities, become a researcher through data donation and help building specific knowledge on rare disease conditions.

Step 1

Join Share4Rare!

A valid email address. All emails from the system will be sent to this address. The email address is not made public and will only be used if you wish to receive a new password or wish to receive certain news or notifications by email.
Several special characters are allowed, including space, period (.), hyphen (-), apostrophe ('), underscore (_), and the @ sign.

Due to EU regulations, this platform is accessible only by users over 18 years old

Disease you are related to
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Do you belong to any patients' registry?
Please, read carefully the Share4Rare terms of use and privacy policy.