Legal notice and conditions of use

Aim of legal notice

As per Article 10 of the Law 34/2002, dated 11th July, on Information Society Services and Electronic Commerce, the user is hereby informed that the owner of the website is the Sant Joan de Déu Research Foundation, located at Santa Rosa 39-53, 08950 Esplugues de Llobregat, with fiscal identification number G62978689 and email address of info@share4rare.org. The owner is recorded in the Registry of Religious Entities of the Ministry of Justice with number 1188-C/1-SE/B.

Everyone accessing this site assumes the role of user, with a commitment to observe and comply rigorously with the rules and regulations herein, as well as any other legal statute that may be applied.

Those responsible for the website reserve the right to modify any of the information appearing on the website, without any obligation to warn or inform the users of said modifications, other than by means of publication on the website by those responsible for it.

Trusted third party and code of behaviour

Those responsible for the website are in adherence to the code of behaviour of the Catalan Union of Hospitals.

Waiver of guarantees and responsibility

Those responsible for the website waive all responsibility for information published on the website when said information has been handled or posted by third parties.

It may be the case that the website will redirect users to content on third party websites. As those responsible for the website may not always be able to control the content posted by third parties on their websites, no responsibility is assumed for the content thereof. In any event, those responsible for this website wish to make it clear that they will move swiftly to take down any content that might be in contravention of national or international legislation, or which may adversely affect public morale and order; in this case the redirecting to the guilty website will be eliminated, and the authorities responsible for the content in question will be duly notified.

The newsletter data from the subscription is managed by mailchimp. Please, review its privacy policy here. To access, correct, update or request deletion of Personal Information, you can contact them directly by emailing at personaldatarequests@mailchimp.com.

Those responsible for this website are responsible for the information and content stored on it, including, but not limited to, forums, chats, blogs, commentaries, social networks, or any other medium that allows third parties to post content independently of those responsible for the web. Nevertheless, in compliance with Articles 11 and 16 of the LSSICE, those responsible for this website will work in concert with users, the authorities and the law enforcement agencies to remove or to block all content that may be in contravention of national or international law, or which may infringe upon the rights of third parties, or which may adversely affect public morale and order. In the event that a user feels that content on the website may represent such contravention, infringement, or adverse effect on public morale and order, he or she is requested to immediately inform those responsible for the website thereof.

Contents

This website is intended to provide information about activities and services hosted and provided by the Sant Joan de Déu Research Foundation. The Sant Joan de Déu Research Foundation reserves the right to make changes in the content and presentation of information on the website at any time and without prior notice.

This website is intended to be informative. It is not meant to take the place of professional medical advice. None of the content of this website, whether of a permanent nature or comments posted by the administrative team, is designed to be used for diagnosis or for medical treatment, nor does it constitute a second medical opinion. The Hospital assumes no responsibility regarding the inappropriate use of the content of this website.

Links

Those responsible for the website place links to make it easier for users to conduct searches and have access to information, services, and other relevant Internet content. The links on the website may lead users to other sites and web pages managed by third parties, over which those responsible for the present website have no control.

Those responsible for the present website assume no obligation to monitor the information or content of other sites that may be accessed through hyperlinks on this site. Nevertheless, it does assume the obligation to remove from this website, in as short a period of time as possible, information, content, or services that are deemed to be untruthful or that may be harmful to the user. 

Intellectual and industrial property

All rights are reserved regarding exploitation. This website is governed by Spanish law, and it is protected by both national and international legislation on intellectual and industrial property.

Regardless of the ends to which the contents of the website are applied, partial or total reproduction, use, exploitation, distribution, or commercialization of these require the express written authorization of the Sant Joan de Déu Research Foundation in Barcelona, as the party that is legally responsible for the website. Any use made of this content without the prior authorization of the Sant Joan de Déu Research Foundation will be considered a serious infringement on intellectual and industrial authorship rights.

The designs, logotypes, text and/or graphics of entities other than SJD Research Foundation that may appear on the website belong to their respective owners; they alone are responsible for any disputes that may arise regarding their use. 

Those responsible for this website recognize the owners of the other entities as having the corresponding intellectual and industrial property rights. Their mention or appearance on this website does not in any way imply the existence of rights or responsibilities of this website over them, nor does it imply support, sponsorship, or endorsement of them by this website.

Those responsible for this website wish to express their gratitude as well to the Internet sources at which they obtained some of the images used to illustrate the contents of this website, and for which explicit credit has been given whenever possible. We believe that these images contribute significantly to providing a clearer idea of the knowledge that we have of the rare diseases from our perspective.

The users of this website should refrain from deleting, altering, avoiding, or handling any protection devices or security systems that may be installed on this site.

In order to offer any commentary regarding possible infringement of intellectual or industrial property rights, or to submit any other comments regarding the contents of the site, users may contact us via the following email address: info@sjdhospitalbarcelona.org

Minors

Users under the age of 18 may not participate in this website. They do not have permission

Applicable law and jurisdiction

For the resolution of any questions or disputes that may arise related to this website or the activities that are carried out in it, the relevant Spanish law will be applied. The parties involved will be subject to resolution of any conflicts that may emerge from use of the website in the court system of Barcelona, Spain.