Let's make rare
extraordinary
How does it work?
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Sign in
and join the community
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Connect
with people like you based on your disease and symptoms
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Share
your knowledge
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Boost research
in rare diseases
Join our community to share your knowledge and data to advance research
The initial research projects are focused on rare tumours and neuromuscular diseases. If you are related to other rare diseases, join the community and connect with people like you to push for new research.
Did you not find information related to your disease? Let us know and we will get back to you.