Lessons learned from TREAT-NMD

On Tuesday December 11, 7pm CET, Share4Rare hosts a webinar that will describe the objectives, goals and achievements of the specialist network TREAT-NMD.

The project was presented to patients and families dealing with muscular dystrophies

Last Saturday, October 27th, the Share4Rare project was presented at the 5th Informative Session for Patients and Families with Neuromuscular Diseases that is annually celebra

When you first look at a project proposal like Share4Rare you cannot help but feel the excitement - a digital solution to help solve so many problems? Sounds too good to be true. But what if it isn’t?

Best innovative project prize for Share4Rare

Share4Rare received an "Innovative project" prize on their poster the at the Better Medicines for Children Conference in Brussels!

How to set up a fundraising plan or implement activities with new ideas

Nonprofit organizations are likely to have limited time and resources to accomplish maximum return on investment. Effective fundraising has the potential to increase donations, grants and gifts.

Research on rare diseases is often difficult to perform mainly because there are only a small number of cases to study, resulting in a vaguely representative statistical analysis of the data

The efficacy of new cancer therapies needs to be measured according to various parameters, but these have failed to be correctly chosen, a study reveals.

On February 2017 various stakeholders and patient representatives celebrated

Learn how to read scientific literature and get the most of scientific congresses

Patient advocates are in contact with many patients and increasingly involved stakeholders in the health debate.

Learn how to create impactful messages to boost engagement, influence, and awareness about your rare disease community

Social media is a cost-effective way for patient organizations and nonprofits to reach your audience and tell your story.