Last Saturday, October 27th, the Share4Rare project was presented at the 5th Informative Session for Patients and Families with Neuromuscular Diseases that is annually celebra
Share4Rare received an "Innovative project" prize on their poster the at the Better Medicines for Children Conference in Brussels!
Nonprofit organizations are likely to have limited time and resources to accomplish maximum return on investment. Effective fundraising has the potential to increase donations, grants and gifts.
Research on rare diseases is often difficult to perform mainly because there are only a small number of cases to study, resulting in a vaguely representative statistical analysis of the data
The efficacy of new cancer therapies needs to be measured according to various parameters, but these have failed to be correctly chosen, a study reveals.
On February 2017 various stakeholders and patient representatives celebrated
Patient advocates are in contact with many patients and increasingly involved stakeholders in the health debate.
Social media is a cost-effective way for patient organizations and nonprofits to reach your audience and tell your story.
A few weeks ago the third and final Share4Rare co-design workshop was held in Barcelona. This activity was enabled by The Synergist and it included participants from 7 different countries.