On Tuesday December 11, 7pm CET, Share4Rare hosts a webinar that will describe the objectives, goals and achievements of the specialist network TREAT-NMD.
The project was presented to patients and families dealing with muscular dystrophies
Last Saturday, October 27th, the Share4Rare project was presented at the 5th Informative Session for Patients and Families with Neuromuscular Diseases that is annually celebrated at
When you first look at a project proposal like Share4Rare you cannot help but feel the excitement - a digital solution to help solve so many problems? Sounds too good to be true. But what if it isn’t?
How to set up a fundraising plan or implement activities with new ideas
Nonprofit organizations are likely to have limited time and resources to accomplish maximum return on investment. Effective fundraising has the potential to increase donations, grants and gifts.
Research on rare diseases is often difficult to perform mainly because there are only a small number of cases to study, resulting in a vaguely representative statistical analysis of the data
The efficacy of new cancer therapies needs to be measured according to various parameters, but these have failed to be correctly chosen, a study reveals.
