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The project: Making a difference in rare diseases

No one is alone in Share4Rare. We are building a community to gather patients, carers, clinicians and researchers to join forces and make a difference in rare diseases.

Living with a rare disease can sometimes be a struggle. Meet our members and see how Share4Rare can help you.

Share4Rare is funded by a Horizon2020 grant from the European Commission. The project is divided into work packages aligned with its strategic objectives.

Cecilia Jiménez, doctor at the Sant Joan Hospital

Cecilia Jiménez

Sant Joan de Déu Research Foundation - Director of the Laboratory of Translational Research into Children's Neuromuscular Disorders

We investigate to deliver effective tratments and the only way forward is to work in parthership with patients and families at all stages of research.

Oncologist at the Hospital Sant Joan de Déu

Jaume Mora

Oncologist at the Hospital Sant Joan de Déu

Research is the only way to get around the limits.

Begonya Nafria, Coordinator of Patient Engagement in Research at HSJD

Begonya Nafria

Sant Joan de Déu Research Foundation - Patient Engagement in Research Coordinator

Share4Rare is a patient centered platform focused in the research that matters to patients.

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This project has received funding from European Union’s Horizon 2020 programme under Grant Agreement 780262

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Share4Rare | Santa Rosa, 39-57 | 08950 | Esplugues de Llobregat (Barcelona) |  Spain | info@share4rare.org

Last updated on Monday, January 30, 2023 at 15:09

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