In the last decade, the amount of knowledge on paediatric brain tumours has increased significantly. However, some rare entities –like GC- are still waiting for new discoveries and innovative therapies. We have learned that GC shares some of the same molecular alterations as other invasive gliomas. However, GC cases must have something else that makes these tumours so invasive and migratory, and resistant to therapy. The scientific community wants to raise awareness about this disease to promote research funding. Research is important for finding patterns and looking for common mutations in patients.12,13
Family foundations are now working together to support physicians and researchers who are committed to learning more about gliomatosis cerebri and to finding effective treatments. International gliomatosis cerebri conferences have been held every two years since 201514,15 and research continues.