Gliomatosis cerebri
Resources
Useful links
- Animated videos for children about paediatric cancer related issues (Pediatric brain tumour foundation): https://www.imaginaryfriendsociety.com/
- Association of relatives and friends of children with cancer from Catalunya (AFANOC): https://www.afanoc.org/es/
- AYJ Fund: https://www.ayjfund.org/
- GC global support group for families on Facebook: https://www.facebook.com/pg/Gliomatosiscerebri.org/posts/
- Gliomatosis cerebri Global: http://gliomatosiscerebri.org/
- National Brain Tumor Society: https://braintumor.org/
- Paediatric palliative care Australia resources: https://palliativecare.org.au/allresources
- Spanish GC association: http://izaslaprincesaguisante.org/izas/izas-y-la-enfermedad/
- Spanish association of teenagers and young adults with cancer: http://www.aaacancer.org/
- Source of scientific papers and updates: https://www.ncbi.nlm.nih.gov/pubmed/
- Youth Cancer Europe: https://www.youthcancereurope.org/
Glossary
Understanding the technical and clinical meanings of the words present in this content is essential. In order to provide you with a reliable source of information about common terms used when talking about brain tumours, we strongly suggest you consult the American Brain Tumor Association Glossary.
Abbreviations
ASCO: American society of clinical oncology
BBB: Blood brain barrier
CNS: Central nervous system
GC: Gliomatosis cerebri
MRI: Magnetic resonance imaging
MRS: Magnetic resonance spectroscopy
PET: Positron emission tomography
PNS: Peripheral nervous system
RDs: Rare diseases
S4R: Share4Rare
Revision history
This material has been produced by different specialists including an oncologist focused on GC of the Sant Joan de Déu children's hospital in Barcelona (Dr. Andrés Morales), and has been reviewed by different empowered caregivers of GC patients: Kathy Arabia, mother of Anna, president of AYJ Fund (USA); Serena Bernacchi, mother of Alexandre and researcher (France); and Mónica Sarasa, mother of Izás, president of "Izás, la princesa guisante" (Spain).