Share4Rare toolkit for patient advocacy

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Where to advocate?

Advocacy takes place all the time all over the world and can happen inside homes or on large conference stages, either in person or via other means. The organic nature of advocacy means that it is a service which grows within communities, from person to person and from group to group. Advocates often exchange information and knowledge to help each other represent the groups they serve.

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Who is this toolkit for?

Everyone who wants to make a difference in his or her disease area. Advocacy is a constantly evolving field that benefits greatly from new ideas as well diverse sets of knowledge. This toolkit is a basic guide for anyone wishing to advocate for the first time, as well as for experienced advocates. It is a roadmap to arm the user with all the information required in order for them to carry out their role in the most effective way.

Last modified
23 April 2019