Share4Rare toolkit for patient advocacy

Others

• Introduction to the toolkit
• Advocacy essentials
• Patient advocacy strategy
• Communication in advocacy
• Advocacy & research
• Advocacy & education
• Advocacy tool templates
• Advocacy resources
• Acknowledgements

Advocacy tool templates

Strategy

SWOT Analysis

Mission, Vision, Strategy

Javelin Experiment Board

Action Plan Template (SMART)

Identifying & Analyzing Your Target Audience

Identifying & Plan Opportunities

Effective Fundraising

 

Advocacy

Writing A Letter To The Editor (+ Template 1) (+ Template 2)

Writing A Letter To A Politician Or Bureaucrat  (+ Template)

Declaration of interest form (Adapted from EMA’s DoI)

 

Communication

Newspaper Cover Story

Evidence Based, Secondary Messages

Personal Storytelling

Prepare Your Pitch

Press Kit

Branding & Graphic Design

Social Media

 

Research

Advocacy groups and their role in rare diseases research

Project Initiation Document
 

Management

Stakeholder Management

Decision Matrix (+ Template)

Building a budget

Risk analysis

Last modified

02 February 2021

New study!

Access to COVID-19 vaccination in people with rare diseases

See the study