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Share4Rare toolkit for patient advocacy

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  • Introduction to the toolkit
  • Advocacy essentials
  • Patient advocacy strategy
  • Communication in advocacy
  • Advocacy & research
  • Advocacy & education
  • Advocacy tool templates
  • Advocacy resources
  • Acknowledgements

Advocacy tool templates

Strategy

SWOT Analysis

Mission, Vision, Strategy

Javelin Experiment Board

Action Plan Template (SMART)

Identifying & Analyzing Your Target Audience

Identifying & Plan Opportunities

Effective Fundraising

 

Advocacy

Writing A Letter To The Editor (+ Template 1) (+ Template 2)

Writing A Letter To A Politician Or Bureaucrat  (+ Template)

Declaration of interest form (Adapted from EMA’s DoI)

 

Communication

Newspaper Cover Story

Evidence Based, Secondary Messages

Personal Storytelling

Prepare Your Pitch

Press Kit

Branding & Graphic Design

Social Media

 

Research

Advocacy groups and their role in rare diseases research

Project Initiation Document
 

Management

Stakeholder Management

Decision Matrix (+ Template)

Building a budget

Risk analysis

Last modified
02 February 2021
New study!

Access to COVID-19 vaccination in people with rare diseases

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This project has received funding from European Union’s Horizon 2020 programme under Grant Agreement 780262

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Share4Rare | Santa Rosa, 39-57 | 08950 | Esplugues de Llobregat (Barcelona) |  Spain | info@share4rare.org

Last updated on Thursday, March 30, 2023 at 12:11

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