Epidermolysis bullosa

Raise awareness about the disease and encourage inclusion. It is recommended the use of tales and stories, promoting from the beginning education on diversity. Growing up with a classmate with different capacities is always a learning opportunity for all the environments. 

Foster a strong relationship between the child and their teachers or support staff.

Reinforce injury prevention methods in the centre: seating the child on soft surfaces, being attentive to their needs, and monitoring diaper changes. 

Material resources adaptation. Each case should be individualized, assessing the manipulative capacity and motricity of each child. Tips: avoid the use of materials with adhesives, use globes to handle different textures, use soft materials, protect or adapt scissors to avoid friction, promote the use of information technology and communication in each stage and prioritize the use of hard cover books with protected edges. 

Adaptation of the centre common spaces. Ensure access to shaded areas outdoors, protective surfaces under playground equipment, and the availability of an individual bathroom or a safe room for cures or bandages change (where a specific first aid kit for the children is) , as well as adapting the lunch service if needed (diet, textures, use of some feeding device, etc.). 

Classroom adaptation. Whenever possible, place the desk in an ease-access area far from the exposure to extreme temperatures, close to the window to favour ventilation and minimizing the smell of the skin injuries. Pad the seat if necessary and provide ample seating with legroom to promote an ergonomic posture. 

Curricular adaptation. Parents should meet with educators at the beginning of the school year to discuss curricular adaptations. This may include flexible scheduling, allowing early exits from class to avoid crowds and the injury risk and incorporating rest periods between activities. Adjustments to physical education and evaluation methods should reflect the child's capabilities.

School absenteeism. Children may miss school for medical appointments, surgeries, or hospitalizations. It is important for teachers to understand the complications associated with EB in these situations.