• Pulseras Candela: boosting childhood cancer research since 2013

    The Association Pulseras Candela was set in motion 7 years ago on the 8 th floor of Sant Joan de Déu Barcelona Children’s Hospital thanks to the unity, love and involvement of many families and
  • First Consensus Meeting of the Melanoma Patient Network Europe: What does a uveal melanoma guideline have to cover?

    First, what actually is uveal melanoma? ‘Uveal melanoma is a cancer that starts in the pigment-producing cells of the eye. It is one of the rare forms of melanoma as it only affects about 6 people out
  • Next stop: improving the quality of life in children with leukemia

    In 1975 Professor Giulio J. D’Angio published an article entitled “ Childhood cancer in perspective. Healing is not enough ”. The author imagined childhood cancer at the end of a long tunnel : looking
  • The rebellion of the leukocytes: Íngrid’s story

    One day, in the summer of 2018, Íngrid felt an unusual pain in the elbow and she noticed it was swelling. The traumatologist concluded that it was due to a simple tendonitis probably caused by the
  • Research projects on rare paediatric tumors and acute lymphoblastic leukemia are about to start!

    On the occasion of International Childhood Cancer Day , which is commemorated annually on February 15 th , Share4Rare launches two new research projects that will help improve scientific knowledge
  • When the sun is your enemy: Pol’s story

    When Pol was only two months old, the first sunburn appeared on his face. Shortly after, similar injuries began to show, major burns in those areas of his body that were not protected by clothing,
  • New Share4Rare research project for children with acute lymphoblastic leukemia!

    Acute lymphoblastic leukaemia (ALL) is the most common type of cancer in childhood , but due to the treatments currently available, the overall survival of children with this disease is now 85% .
  • Objective: increasing survival rates for children with cancer

    More than 400,000 children and young people are expected to develop cancer every year. However, not all of them have the same chance to survive. In high-income countries (HICs), five-year survival
  • The research project for paediatric gliomatosis cerebri is already here!

    Some time ago we met Mónica , Izas's mum and president of the Spanish association of gliomatosis cerebri " Izas, la princesa guisante ". Her story is an example of courage, struggle and dedication.
  • An international congress to be held in Barcelona will boost research in infantile gliomatosis cerebri

    The III International Congress for Research on Infantile Gliomatosis Cerebri will be held in Barcelona next September 22nd and 23rd, and it is organized by Izás, la princesa guisante (Spain) and co
  • What is Proteus syndrome? Symptomatology and genetic origin

    As we mentioned in a previous article , PI3K related overgrowth syndromes, which include Proteus syndrome , have been linked to a mutation in AKT , (in this case the isoform AKT I) and has a
  • The genetic and biochemical origin of the PI3K related overgrowth syndrome (PROS)

    Cells replicate obeying to extra and intracellular signaling pathways. External signaling includes stimuli from hormones , inflammatory factors or other external influences that can alter the cells