• Share4Rare Webinar: "Social media in Rare Diseases"

    Social media is a cost-effective way for patient organizations and nonprofits to reach your audience and tell your story. In fact, over four in ten of the world’s population use social media platforms
  • Patient-powered co-design workshop 3

    A few weeks ago the third and final Share4Rare co-design workshop was held in Barcelona. This activity was enabled by The Synergist and it included participants from 7 different countries. What the
  • Patient-powered co-design workshop 2

    The second co-creation workshop was part of the continuing community outreach of Share4Rare, as we work to bring better understanding, acceptance and inclusion of those diagnosed or dealing with rare
  • Share4Rare was born!

    Sant Joan de Déu Foundation has been granted for the European Commission to coordinate the Share4Rare project. This is a collective awareness platform of patients, caregivers, researchers and other