• Asia, Latin America and Europe unite and acknowledge the need for a global strategy in the field of rare diseases

    On October 19 th to 21 st , the APARDO summit joined together patient advocates from 17 countries around the world, and its goal was to share all the current worldwide rare disease scenarios and to
  • Share4Rare Webinar VI: "How your data is processed in Share4Rare"

    What we will talk about in this webinar Alex Perera , from the Polytechnic University of Catalonia , will explain how Share4Rare follows the European privacy regulation for the collection, usage and