Share4Rare toolkit for patient advocacy


Identify opportunities and activities for your messages

Use the Identify & Plan Opportunities tool to uncover relevant topics, themes and messages for your target audience. By listening to your stakeholders, making an inventory of your competitors and staying up to date on relevant developments in your field of interest, you have enough examples and input to deliver relevant messages.

Subscribe to the newsletter, PubMed articles, monitor the web by setting a Google Alert on interesting keywords and have casual or formal interviews with your target audience to uncover needs and desires.

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Subsequently, you want to translate your findings into action by enabling resources to create leverage and influence decision-makers. Choose the scale of your action and platform for disseminating your message wisely, as you attract a different target audience and need to be prepared for reactions that can be both positive and negative.

Last modified
28 January 2021
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Access to COVID-19 vaccination in people with rare diseases