Share4Rare toolkit for patient advocacy


Accessing medical literature

Unfortunately, not all medical literature is openly available. An easy and legal tool to access publications is via Unpaywall where you can download a Google Chrome extension that will simply allow you to view those publications Unpaywall has on their database constantly increasing – and there are over 23.200.000!

Open Science

Open Science is not different from traditional science, it just means that you carry out your research in a more transparent and collaborative way. Open Science applies to all research disciplines.

Open Science means faster and wider sharing of information, which is critical for the speed with which research progresses - something of essential value to patients.

For an introduction, take this free course to learn more about what Open Science exactly means and why it matters.

Foster Open Science is a platform dedicated to Open Science and offers a wide range of online courses.

Last modified
01 February 2021
New study!

Access to COVID-19 vaccination in people with rare diseases