Retinoblastoma
Resources
Useful links
- Childhood Eye Cancer Trust (CHECT)
- National Organizations for Rare Disorders (NORD)
- Retinostop
- KAKS
- Facebook support group
- Animated videos for children about paediatric cancer related issues (Paediatric brain tumour foundation)
- Youth Cancer Europe
- Spanish association of teenagers and young adults with cancer
- Association of relatives and friends of children with cancer from Catalunya (AFANOC)
- Source of scientific papers and updates
- Miradas mágicas: Families with children with retinoblastoma in Spain
Glossary
Understanding the technical and clinical meanings of the words present in this content is essential. In order to provide you with a reliable source of information about common terms used when talking about retinoblastoma, we strongly suggest you consult the New York Eye Cancer Center Glossary.
Abbreviations
Optic Nerve: ON
Retinoblastoma: RB
Event Free Survival: EFS
Disease Free Survival: DFS
Magnetic resonance imaging: MRI
Computerized tomography: CT scan
External beam radiotherapy: EBRT
Rare diseases: RD
Share4Rare: S4R
Revision history
This material has been produced by different specialists including ophthalmologists focused on retinoblastoma of the Sant Joan de Déu children's hospital in Barcelona (Dr. Jaume Català and Dra. Maria Genoveva Correa), and has been reviewed by different empowered caregivers of retinoblastoma child patients.