Skip to main content
Home Share4Rare
  • The project
    • The project
    • Our story
    • Advisory Board
  • Rare diseases
    • Research studies
    • Medical books
    • Patient Organizations
    • Welcome Kit for Patient Organizations
  • Blog
    • Blog
    • Press room
  • Contact
    • Contact
    • FAQs
Register!
Sign in
Forgot password?
New in Share4Rare?Register!
  • enes
enes

Paediatric palliative care

Others
  • A Family Companion
    • Introduction to paediatric palliative care
    • Diagnosis or Recognition
    • Ongoing Care
    • End of life and bereavement
  • Finding Reliable Information
  • Where will my child be cared for?
  • Decision Making
  • Looking after yourself while caring for your child
  • Helping your Partner
  • Sibling Support
  • Supporting someone who is caring for a seriously ill child
  • What to expect in the final days
  • Siblings & Grief
  • Spiritual, Religious and Cultural Wishes
  • Teachers supporting students at school
  • Supporting someone who is grieving the loss of a child

Ongoing Care

In this section you will find:

  • Where can my child be cared for?
  • Care plan
  • Symptom management 
  • Family considerations and concerns
  • Family, friends and our community
Image of cubes with health icons

 

Please go to Palliative Care Australia website or download this information HERE.

 

Last modified
12 November 2019
  • Previous
  • Up
  • Next

¿Estás interesado en formar parte de nuestra comunidad?

Join in!
  1. Share4Rare
  2. Rare diseases
  3. Ongoing Care
European Union
logoShare.png

This project has received funding from European Union’s Horizon 2020 programme under Grant Agreement 780262

Follow us

  • Facebook
  • Twitter
  • LinkedIn
  • Instagram
  • Youtube
Share to help us reach patients with rare diseases all around the world!
Share
Instagram

Help us boost research in rare diseases

We can make patient-centered research projects come true thanks to your donations.

Donate
Fill 1 Copy

Donate now

Share4Rare | Santa Rosa, 39-57 | 08950 | Esplugues de Llobregat (Barcelona) |  Spain | info@share4rare.org

Last updated on Miércoles 14 de Mayo de 2025 a las 11:11

Footer menu

  • Data protection policy
  • Legal advice
  • Cookies policy
  • Contact

Almost there... but still some information to go!

We have just sent you an email with a one time only validation link. Please, check your inbox (or spam folder if you can't find it) and follow the click on the link to complete your registration and start using Share4Rare.

It will only take a few minutes!

Thank you!

You are now part of the Share4Rare community.

Just remember that, in order to take full advantage of this platform, we still need to validate your identity. You will need to upload some documentation to be able to access all the functionalities and connect with your peers.

Let's make Share4Rare extraordinary!

Sign and accept the informed consent for each patient.

Please read it carefully. You will always find it available on your profile.

If a new project can benefit from your participation, we will ask you again for your consent.

Personal validation

The validation of your identity is performed to ensure that Share4Rare is compliant with the security standards of the participants.

Please validate your user profile by submitting an official document that confirms your identity like a scanned copy of your passport, identity document, or medical report.

I will do it later