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A global community tailored for people affected by rare diseases where you can:
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Learn more
15 November 2024
Biobanks: Research allies. A new episode of Rare Horizons.
05 November 2024
The role of patient organisations in implementing newborn screening for rare diseases
19 July 2024
Language discrimination in the access of children living with rare diseases to cross-border clinical trials in Europe
21 June 2024
Funding for the best collaborative research initiative: extension of the deadline for the Share4Rare Call4Projects
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