Myotonic dystrophy


Useful resources

We would like to thank the Myotonic Dystrophy Foundation for providing access to their Myotonic Dystrophy Toolkit (Copyright © 2015 Myotonic Dystrophy Foundation) and other resources.


Myotonic Dystrophy UK

The Christopher Project

Myotonic Dystrophy Support Group

Revision history

This material was produced by Dr Michela Guglieri at the John Walton Muscular Dystrophy Research Centre, Newcastle University, UK and Dr Teresinha Evangelista, formerly at the John Walton Muscular Dystrophy Research Centre, currently at Assistance Public Hopitaux de Paris. A. Cecilia Jimenez-Moreno (PhD), Research Associate and Physiotherapist, Newcastle University also provided expertise and input. Additional support was provided by Avril Palmeri, John Walton Muscular Dystrophy Research Centre.

The material was reviewed by Jeanette Charlton, a carer for family members with myotonic dystrophy; Sian Rixon, diagnosed with myotonic dystrophy and mother of a child with myotonic dystrophy; and Jon Watkins, diagnosed with myotonic dystrophy.

Last modified
31 October 2019