Myotonic dystrophy

Neuromuscular

Disease management

Myotonic dystrophy is a progressive or degenerative disease. Symptoms become worse over time. No treatment currently exists but management of symptoms can improve quality of life. 

Consensus-based care recommendations and the MDF Toolkit are available from the Myotonic Dystrophy Foundation: 

Link to Myotonic Dystrophy Toolkit page 25

Last modified
31 October 2019
New study!

Impact of neuromuscular diseases on education and working opportunities of patients and carers