Vascular anomalies
Disease management
These entities are entitled as very rare. Therefore, families feel alone and helpless many times, and, as mentioned previously, differential diagnosis is not easy and these syndromes are often misdiagnosed, so families have to visit different hospitals until they find the answers they are looking for.
Palliative care
Palliative care is an interdisciplinary approach for people with life-limiting illnesses. It focuses on providing relief from physical and emotional suffering at any stage of illness. The goal is to improve the quality of life for both the patient and their family.
A palliative care program may include physicians, nurses, social workers and psychologists. They work together with the primary oncologist to provide additional support. It is appropriate at diagnosis of a serious illness and can be provided as the main goal of care. Although their role is critical at end-of-life care, it is not limited to that. Palliative care can be provided across multiple settings including hospitals, at home, as part of community palliative care programs, and in skilled nursing facilities. Interdisciplinary palliative care teams work with people and their families to clarify goals of care and provide symptom management, psycho-social and spiritual support.
Further information and resources are available at our curated content for Paediatric Palliative Care.