Pancreatic rare tumours
Resources
Useful links
- Pancreatic cancer UK: https://www.pancreaticcancer.org.uk/
- Lustgarten Foundation: https://www.lustgarten.org/
- Spanish Pancreatic Cancer Asociation: https://www.asociacioncancerdepancreas.org/
- Pancreatic Cancer Action Network: https://www.pancan.org/
- Hirshberg Foundation: http://pancreatic.org/
- Pancare Foundation: https://www.pancare.org.au/
- Paediatric palliative care Australia resources: https://palliativecare.org.au/allresources
- Youth Cancer Europe: https://www.youthcancereurope.org/
- Spanish association of teenagers and young adults with cancer: http://www.aaacancer.org/
- Association of relatives and friends of children with cancer from Catalunya (AFANOC): https://www.afanoc.org/es/
- Source of scientific papers and updates: https://www.ncbi.nlm.nih.gov/pubmed/
Glossary
Understanding the technical and clinical meanings of the words present in this content is essential. In order to provide you with a reliable source of information about common terms used when talking about pancreatic tumours, we strongly suggest you consult the Pancreatic Cancer UK Glossary.
Abbreviations
CT: Computed tomography
MRI: Magnetic resonance imaging
MRS: Magnetic resonance spectroscopy
PanNENs: Pancreatic NeuroEndocrine Neoplasms
PET: Positron emission tomography
RDs: Rare diseases
S4R: Share4Rare
SPN: Solid pseudo-papillary neoplasm
Revision history
This material has been produced by different specialists including an oncologist focused on paediatric pancreatic rare tumours of the Sant Joan de Déu children's hospital in Barcelona (Dr. Ofelia Cruz), and has been reviewed by different empowered caregivers of pancratic cancer patients: Jay Diamond, member of Pancreatic Cancer UK (UK); and others.