RDI and EURORDIS Webinar: The Fundamentals of International Advocacy for Rare Diseases
Sometimes we want to give a helping hand, but we are not sure where we should be focusing our efforts. To fight for patients and caregivers' rights, rare disease advocates must learn basic skills and how to get by in an international policy environment.
In this context, Rare Diseases International (RDI) and EURORDIS Open Academy are joining forces to offer a very interesting and free training on this subject.
On September 22nd 2:00PM (CET) both organisations will offer a webinar entitled The Fundamentals of International Advocacy for Rare Diseases that will cover diverse aspects of international rare advocacy:
- What the most important institutions and initiatives for international advocacy are.
- How you can join the international advocacy efforts to ensure a brighter future for the people living with a rare disease.
This webinar is dedicated to patient representatives who want to get involved in international policy and do not know where to start.