Share your diseases and your symptoms to help us find people who are just like you for you to connect!
Contribute to research by donating medical information about your disease.
Share4Rare is going to be piloted with three groups of conditions: rare tumours, neuromuscular disorders and undiagnosed. Besides, we publish quality medical content for these conditions and more, and other diseases are constantly being added to our activities.
Check back from time to time!
Check out the chapters, use the templates and define your strategy to set a strong base for your advocacy effort. Raise awareness and understanding in your rare disease in terms of communication, research, education, and much more.
No one is alone in Share4Rare. Come in, meet peers, join forces. Make the difference.