Welcome to Share4Rare

Thank you for joining.

 

This research project consists of 2 parts: 1. registration and validation 2. the study part. This makes sure that participants are patients and family members and can provide their answers anonymously.

STEP1:

You will receive an email with a link to activate your account and validate your profile by providing a medical report or ID document confirming your name. That information will only be used to validate your profile and the data be securely held on the serves of the Hospital Sant Joan de Déu, address here:  Santa Rosa, 39-57 | 08950 | Esplugues de Llobregat (Barcelona).

 

STEP2:

As soon as your profile has been validated, you will receive an email with the invitation to this specific study. Please allow up to 48h for the validation to take place.

 

NEXT STEP- Check your e-mail!