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Join Share4Rare!

A global community tailored for people affected by rare diseases where you can:

  • Help to build specific knowledge on rare diseases
  • Participate in research by sharing your data
  • Meet other people affected by similar conditions
  • Find and offer expertise, knowledge and support

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The email address is not made public. It will only be used if you need to be contacted about your account or for opted-in notifications.
Sunt permise cateva caractere: spatiu, punctul (.), cratima (-), apostroful ('), sublinierea (_) si semnul @.
This information is optional.
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This project has received funding from European Union’s Horizon 2020 programme under Grant Agreement 780262

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Share4Rare | Santa Rosa, 39-57 | 08950 | Esplugues de Llobregat (Barcelona) |  Spain | info@share4rare.org

Last updated on Miércoles 14 de Mayo de 2025 a las 11:11

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Aproape gata..insa mai multa informatie va fi disponibila!

V-am trimis un email care contine un link unic de validare. Va rugam verificati in folderul cu mesajele primite (Inbox sau Spam daca nu gasiti mesajul in Inbox) si urmati linkul pentru a completa Inregistrarea. Apoi puteti incepe sa utilizati Share4rare.

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Thank you!

You are now part of the Share4Rare community.

Just remember that, in order to take full advantage of this platform, we still need to validate your identity. You will need to upload some documentation to be able to access all the functionalities and connect with your peers.

Let's make Share4Rare extraordinary!

Sign and accept the informed consent for each patient.

Please read it carefully. You will always find it available on your profile.

If a new project can benefit from your participation, we will ask you again for your consent.

Validarea personală

The validation of your identity is performed to ensure that Share4Rare is compliant with the security standards of the participants.

Please validate your user profile by submitting an official document that confirms your identity like a scanned copy of your passport, identity document, or medical report.

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