MPNE - The burden of melanoma
A melanoma diagnosis means a considerable burden for patients and their family members.
We would like to better understand the burden melanoma causes, how it shapes people’s thinking and what helps them cope with it.
This study captures to understand a melanoma patient’s or carer’s mental adjustment to cancer, their risk and benefit preferences in treatments and their experiences about impact and coping with the disease.
This is a study conducted by the Melanoma Patient Network Europe, a Share4Rare partner.
Research is at the heart of Share4Rare. Join the community and participate in this research project!