Webinars for patient organizations: how to conduct research based on patient-reported data
A few weeks ago, we opened the period for reception and evaluation of projects based on patient-reported data for 2026. Therefore, at Share4Rare, we have organized a series of webinars aimed at patient organizations to explain how to implement projects through our platform, as well as the services we offer, the types of projects that can be implemented, and how the process works.
En total se realizarán dos webinars: uno en español y otro en inglés, y ambos serán online. Las fechas son las siguientes:
A total of two webinars will be held: one in Spanish and one in English, both online. The dates are as follows:
- Webinar in Spanish: Thursday, April 9, from 3:00 to 4:00 pm (CET)
- Webinar in English: Thursday, April 16, from 3:00 to 4:00 pm (CET)
The following topics will be covered in both webinars:
- 3:00 pm | Welcome and introduction
- 3:05 pm | Share4Rare as a research tool
- 3:15 pm | Research services in Share4Rare
- 3:20 pm | Process for reception and evaluation of research projects for 2026
- 3:25 pm | Types of projects that can be implemented in Share4Rare: Examples
- 3:40 pm | Cross-cutting projects
- 3:55 pm | Q&A and closing remarks
We invite all rare disease patient organizations, those already members of Share4Rare and those not yet, to register for the webinar using this registration form.
And if you know anyone who might be interested, please feel free to share this information with them.