Share4Rare Webinar: "Social media in Rare Diseases"

Learn how to create impactful messages to boost engagement, influence, and awareness about your rare disease community

Social media is a cost-effective way for patient organizations and nonprofits to reach your audience and tell your story. In fact, over four in ten of the world’s population use social media platforms to interact, making it a powerful device for creating meaningful interactions with your audience. However, not all social media platforms are created equal. Where exactly can you find your target audience? How do you grasp their attention so they listen to your story? Share4Rare presents a social media webinar to help you find answers to these questions:  'Social Media in Rare Diseases'.

During this free webinar next Thursday September 27th we will cover how to identify key stakeholders, and use storytelling techniques to deliver your message to your audience.

This webinar will be of interest to patients, caregivers and advocates.

Webinar Speakers:

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Suzie-Ann Bakker - Communications coordinator at World Duchenne Organization (Moderator)



Begonya Nafria - Patient Engagement in Research Coordinator at Sant Joan de Déu Research Foundation - S4R Coordinator (Speaker)


Estibaliz Urarte - Communications manager in the Patient Engagement at Sant Joan de Déu Research Foundation (Speaker)


Join us on Thursday, September 27, 19:00 CEST on our Social Media in Rare Diseases webinar. 

The activity is in English and registration is required.

(Note: by clicking on this link you can watch the recording of the webinar with subtitles in English and Spanish)

Webinar_Social media in Rare Diseases