Poster prize for Share4Rare!
Share4Rare received an "Innovative project" prize on their poster the at the Better Medicines for Children Conference in Brussels! This conference is organized by the European Forum for Good Clinical Practice (EFGCP) in collaboration with the Drug Information Association (DIA) and regulators to take stock of the progress achieved in the paediatric field after 10 years of Paediatric Regulation, as well as to move the discussion forward.
At the poster session, Share4Rare received the prize as the best innovative project in the congress. The presenting authors of the winning posters have the possibility to publish an abstract of their work in Therapeutic Innovation & Regulatory Science magazine.
“Receiving the prize represents recognition that our platform, with its innovative design, will increase research in the paediatric rare disease setting” says Begonya Nafria, Patient Engagement in Research Coordinator at Sant Joan de Déu Foundation in Barcelona. “We will launch the platform at the beginning of the next year. With this prize, we will publish a paper to disseminate the co-design with patients that is at the heart of the development of the project.”
Additionally, Dimitrios Athanasiou, board member of World Duchenne Organization and Patient Representative in the EMA's Paediatric Committee states: “[…] winning the prize validates our approach with the best multi-stakeholder approach in paediatric diseases within the EU, representing industry, regulators, health care professionals, and patient organisations. This endorsement concept empowers our consortium just few months before the launch of the platform”.
Click here to see the full poster
During the poster session, the conference showcased some best practice examples of paediatric research & developments that address unmet medical needs in children and that have been successfully developed under the EU Paediatric Regulation.
For questions and inquiries about this article, please contact Suzie-Ann Bakker at info@share4rare.org
