Data protection policy

Clauses

  1. IDENTIFICATION OF ENTITY RESPONSIBLE FOR THE WEBSITE
  2. RIGHT OF INFORMATION AND USER CONSENT
  3. USER RIGHTS OF ACCESS, RECTIFICATION, OPPOSITION, AND CANCELLATION
  4. SECURITY
  5. OFFENSIVE AND INAPPROPRIATE BEHAVIOR
  6. INFORMATION ABOUT COOKIES
  7. IP ADDRESSES
  8. MODIFICATION OF THE PRESENT POLICY OF DATA PROTECTION

1.  Identification of entity responsible for the website

Legal entity: Fundació Privada per a la Recerca Sant Joan de Déu
Commercial designation: Hospital Sant Joan de Déu
Legal address: Santa Rosa, 39-57, 08950 Esplugues de Llobregat, Barcelona, Spain
Fiscal identification number: G62978689
Telephone: +34 93 600 97 51
Fax: +34 93 600 97 71
Email: info@share4rare.org

Domain: www.share4rare.org
 
Henceforth ‘HSJD’.

If you provide personal information, it will be treated according to the terms of the General Data Protection Regulation and Organic Law on the Protection of Data.

FSJD will only handle the personal data of users it deems appropriate, relevant and not excessive, in order to adequately meet the data management objectives, in accordance with the principle of quality, Article 4, of the Data Protection Law, and other principles of the GDPR (articles 5 to 11)The owners of the data have the rights of access rectify, and delete, restriction of processing and data portability; as detailed in the Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 on the proteccion of natural persons with regard to the processing os personal data on the free movement os such data (GDPR).

In like manner, when the consent of users is required for the handling of their personal data, this consent must be given by individuals fully qualified to do so, either by a legal representative or guardian. Such consent will be revocable and will never be retroactive, in accordance with Articles 7, 8 and 9 of the GDPR.

FSJD guarantees that it has put in place the needed measures of security in its facilities, systems, and files. Furthermore, it guarantees the confidentiality of the personal data, although it will provide personal data and any other information that it has in its possession or to which it has access through its systems to the public authorities if required to do so under the terms of the applicable laws and regulations.

Your data will not be shared with third parties nor will they be used for any purpose other than that established by the present document, unless judged otherwise by the law.

The user is responsible for the accuracy of his or her personal data and is required to inform FSJD of any changes that may occur.

All of the data requested at this website are obligatory, as they are needed in order to provide optimal service to the user. In the event that all the requested data are not provided, FSJD cannot guarantee that the information and services provided by it will be fully in line with user needs.

The user guarantees that the personal data provided to FSJD are true and complete, and recognizes the requirement to inform FSJD of any modifications that may be made to them.

3.  User rights of access, rectification, challenge, and cancellation

FSJD guarantees the users at all times the opportunity, in relation to their personal data, to exercise their rights of access, rectification, cancellation, information, and challenge, under the terms laid out in the prevailing legislation. To such ends, as specified in the Law on the Protection of Data, users may exercise these rights by sending a written request, along with a photocopy of their national identity document or equivalent, to:

Email: info@share4rare.org

Fax: +34 93 600 97 71

Mailing address: Santa Rosa, 37-51. 08950 Esplugues de Llobregat, Barcelona, Spain

4.  Security

FSJD has put in place the level of security mandated by Article 9 of the Law on the Protection of Personal Data and the regulations for its application, and all the necessary technical means are operative to prevent the loss, misuse, alteration, unauthorized access or theft of the data that the user provides through the website. However, the means of security available for Internet use are not impregnable.

FSJD is fully committed to maintaining the secrecy and confidentiality of the data contained on the website in accordance with the applicable legislation, as well as being committed to secure handling of the data.

5.  Offensive and inappropriate behavior

In the event that a user posts inappropriate or unacceptable content on the website, or engages in disruptive behavior, FSJD will use email to warn the user about the conduct or use the personal information of the user to bring such conduct to an end.

In addition, should FSJD be reasonably certain that a user has infringed upon, or may have infringed upon applicable Spanish legislation, FSJD may use your personal information to inform the relevant authorities thereof.

6.  Information about cookies

What is a cookie?

A cookie is a file that is downloaded to your computer and stored on it when you access a particular website. Cookies allow pages to recover information about the browsing habits of users and their computers. Depending on the information that they contain, and the use to which the computer is put, they may be used to recognize the user.

Name of cookie Domain of cookie Expiration Use of cookie
_dc_gtm_ua share4rare.org 10 minutes Share4rare uses Google Tag Manager in this site to monitor the activity on it.
_ga share4rare.org 2 years Google Tag Manager cookies collect standard log information and data about the habits of visitors anonymously
_gid share4rare.org 1 day Google Analytics uses it to distinguish the users.
cookie-agreed share4rare.org 3 months Remembers whether the visitor has accepted the cookie policy
__cfduid addtoany.com 5 years It is set by the CloudFlare service to identify trusted web traffic. It does not correspond to any user id in the web application, nor does the cookie store any personally identifiable information.
https://support.cloudflare.com/hc/en-us/articles/200170156-What-does-th…-

 

This is a complement to information provided earlier. The user may at any time cancel the use of cookies on this web site by modifying the configuration of the web browser used, as follows:

7.  IP Addresses

The servers hosting the website can automatically detect the IP address and domain name used by the user to access the site. An IP address is a number assigned automatically to a computer when it connects to the Internet. This information is recorded in an activity log on the server which allows for subsequent processing of the data to obtain statistical information about use, such as the number of pages printed, the number of visits made to the website, the order of the visits, the point from which the website was accessed, and other information concerning legitimate activity.

If you are in doubt about, or in disagreement with, our policy of personal data protection, please contact us at the following email address: dpd@sjdhospitalbarcelona.org

8.  Modification of the present policy of data protection

FSJD reserves the right to modify the present policy so as to adapt to future changes in the law and its application, as well as to changes in industrial practice. In all such cases the user will be notified in advance of any changes to be made.