Join Share4Rare!

A global community tailored for people affected by rare diseases where you can:

  • Help to build specific knowledge on rare diseases
  • Participate in research by sharing your data
  • Meet other people affected by similar conditions
  • Find and offer expertise, knowledge and support

Create your Share4Rare account

Step 1 of 4
Sign up to gain full access to this unique community.
A valid email address. All emails from the system will be sent to this address. The email address is not made public.
Several special characters are allowed, including space, period (.), hyphen (-), apostrophe ('), underscore (_), and the @ sign.
This information is optional.
Are you the patient?
We will ask for patient information later