Join Share4Rare!

A global community tailored for people affected by rare diseases where you can:

  • Help to build specific knowledge on rare diseases
  • Participate in research by sharing your data
  • Meet other people affected by similar conditions
  • Find and offer expertise, knowledge and support

Create your Share4Rare account

Step 1 of 4
Sign up to gain full access to this unique community.
The email address is not made public. It will only be used if you need to be contacted about your account or for opted-in notifications.
Several special characters are allowed, including space, period (.), hyphen (-), apostrophe ('), underscore (_), and the @ sign.
This information is optional.
Are you the patient?
We will ask for patient information later

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