Header for the page presenting the Project

The project: Making a difference in rare diseases

No one is alone in Share4Rare. We are building a community to gather patients, carers, clinicians and researchers to join forces and make a difference in rare diseases.

Living with a rare disease can sometimes be a struggle. Meet our members and see how Share4Rare can help you.

Share4Rare is funded by a Horizon2020 grant from the European Commission. The project is divided into work packages aligned with its strategic objectives.

Cecilia Jiménez

Sant Joan de Déu Research Foundation - Director of the Laboratory of Translational Research into Children's Neuromuscular Disorders

We investigate to deliver effective tratments and the only way forward is to work in parthership with patients and families at all stages of research.