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S4R's press room

Press room

 

Here you can find press and media material and releases for your use. If you need something more specific do not hesitate to contact our media department.

 

Contact information

Santa Rosa 39-57
08950 Esplugues de Llobregat
info@share4rare.org
Tel.: +34 673 138 681

 

Media kit

 

Platform flyer and banners

Here you can find a flyer ready to be printed in English and Spanish, together with some promotional banners to help us grow and give us visibility.

Please, send this to the local institution you might know and help us spreading the project!

 

  • Flyer and banners in English (128 Mb)
  • Flyer and banners in Spanish (128 Mb)

 

COVID-19 study

Find the promotional web and social media banners and the videos to publicise the study on the burden of COVID-19 in people affected by a rare disease, both in English and in Spanish.

 

  • Banners in English (205 Mb)
  • Banners in Spanish (65 Mb)

 

Acute Lymphoblastic Leukemia study

Find the promotional flyer ready to be printed and web and social media banners to publicise the study on the long time effects of the treatment of Acute Lymphoblastic Leukemia in paediatric patients, both in English and in Spanish.

 

  • Flyer and banners in English (71.5 Mb)
  • Flyer and banners in Spanish (117 Mb)

 

Neuromuscular Diseases study

Find the promotional flyer ready to be printed and web and social media banners to publicise the study on understanding how neuromuscular diseases impact learning and working opportunities for patients and carers, both in English and in Spanish.

 

  • Flyer and banners in English (100 Mb)
  • Flyer and banners in Spanish (100 Mb)

 

Paediatric rare tumours study

Find the promotional flyer ready to be printed and web and social media banners to publicise the study on the description of the natural history of ultra-rare paediatric tumours, both in English and in Spanish.

 

  • Flyer and banners in English (115 Mb)
  • Flyer and banners in Spanish (115 Mb)

 

Undiagnosed patients study

Find the promotional web and social media banners to publicise the study on the burden of searching for a diagnose in undiagnosed patients form a holistic perspective, both in English and in Spanish.

 

  • Flyer and banners in English (1 Mb)
  • Flyer and banners in Spanish (1 Mb)

 

Otros contenidos de prensa

  • Platform banners for web and social media
    10 October 2019

    Platform banners for web and social media

  • Platform banners for web and social media
    10 October 2019

    Banners de la plataforma para web y redes sociales

  • Dos participantes trabajando codo a codo en el evento Rarehacks
    09 July 2019

    Nota de prensa - Rarehacks: un hackathon por las enfermedades raras

  • Two participants working shoulder to shoulder in the Rarehacks event
    09 July 2019

    Press note - Rarehacks: a hackathon for rare diseases.

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This project has received funding from European Union’s Horizon 2020 programme under Grant Agreement 780262

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Share4Rare | Santa Rosa, 39-57 | 08950 | Esplugues de Llobregat (Barcelona) |  Spain | info@share4rare.org

Last updated on Viernes 9 de Mayo de 2025 a las 09:46

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